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@adlttl123

I’m so glad that you wrote and gave us an explanation of your long experience with RA. And you are very articulate. You have suffered for a long long time with the RA and all the falls and such that you have had. How are you now? Hope you will stay close to the group it’s a great group of people. I’ve learned a lot.

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Replies to "I’m so glad that you wrote and gave us an explanation of your long experience with..."

"Thank you for your support and kind words.
It seems that with R A, that I am a child again trying to make a sand castle in very dry sand. I can call on my imagination to overcome reality. There is no clear sense of any concrete progress as much as continually on an ever changing battlefield. I had my eyes checked and have new glasses, but my eyesight is digressing. I can see that going online and texting on my phone are a factor, but there seems to be relationships with different things that don't really offer clear ways to combat them. I was out walking on a trail in the woods to refill some bird feeders I have out there and with no warning fell on my head. I didn't have any chance to put out my arm in time. I just drove my head into the mud and grass. I felt my neck starting to bend to the breaking point and then stop. In late fall the ground would have been frozen. I think that I would be in for another concussion. Now with R A, when I slipped on some ice and hit my back, it felt like my back was welded into a solid mass, and then the pain came out in my arms, like my upper arms were nailed onto my shoulders. It seems with R A, my body is not reacting how it has most of my life. Before I would take illnesses on with a clear motive and plan to overcome the damage. With RA, It seems I am wrestling with some invisible opponent, where what I seem to be engaged in has some sort of gap with what is happening with my mind and body. I am accepting that I have to confront depression and anxiety, but what I have done before is now disconnected and there is no sense of progress. I work on building up confidence to do things I did before, but I somehow feel too disconnected in myself to take them on.
( to be continued)

It seems dysgeusia for me is linked to R A. It is constantly changing. Something cooked exactly the same way one day later can taste rotten, and then in a few days taste alright. Right now my favorite thing to eat is frozen blueberries. I find that food is more edible either very hot or very cold. This seems to fool the dysgeusia reaction.
After my fall before at the cabin and the parkinsonism that came several weeks later, I found it was more manageable than R A, as I did slowly improve. I had been jogging for around 40 years, and then I couldn't even walk without dragging one foot. I often fell in the ditch along the road. I went down out of sight to this sandy beach and tried to run, falling onto the soft sand. I was happy having given up appearances. I did slowly increase my time hobbling and not falling. ( to be continued )