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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (808)
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@starbuck41

It’s day 7
5mg 0807am
Weight 265.3
Breakfast was just 10oz of coffee, my appetite was almost non existent, it’s 1700 and I’m making oven fried chicken, with mashed potatoes for dinner.. I didn’t fall asleep last night till about 0300.. but I have insomnia.. my extra motivation to do stuff has made my back twinge..so with doing I’m gonna add 10/325 oxycodone with 500mg metformin…still no adverse side effects and I still feel good.

Of note at about 2100 last night I had a protein smoothie.. it has 100mg of caffeine but I wasn’t wired just not relaxed enough to fall out..

It’s raining so no higher elevation forays this week but I’m geared for it.. June 2nd is my first cardiologist appointment since starting Camzyos.. I’ll keep y’all posted
Till tomorrow y’all
Dave

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Replies to "It’s day 7 5mg 0807am Weight 265.3 Breakfast was just 10oz of coffee, my appetite was..."
avcowie | @avcowie | May 18, 2023

Thanks for your updates. Very helpful. I didn’t know the elevation thing was a thing. I used to get the symptoms at my former workplace coming off of the escalator. Drs wouldn’t say anything about that. Hmmmmm

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Debra, Volunteer Mentor | @karukgirl | May 18, 2023

Well, you made it one week!
So far so good. I'm happy to hear you do not feel any adverse side effects to the Camzyos thus far. June 2 is just around the corner. Hoping all the tests they plan to do all go well with only good results. Be sure to write down any questions you have to take with you so you don't forget. I think we think we can remember, but then we forget when we get there!
I am not sure having a "smoothie" at 9pm with 100mg of caffeine has anything to do with not sleeping...but maybe? It's only 5mg more than a regular cup of strong coffee. At 9 o'clock at night. Hmm🤨 Just sayin'.
Maybe it's a good thing it is raining there, being up in higher elevations may not be the right time yet. Wait to see what your doctor says? Maybe let him/her give you to go ahead to mountain goat first? Do you know what tests they will be doing? Lab/x-ray etc?
Till tomorrow, Sir.

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