← Return to Chronic Fatigue Syndrome and Small Fiber Neuropathy: What helps?

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@kmom5942

Hi, @sharka.

I have had sfn for about 30 years. Started meds in 2011, gabapentin, and it was slightly helpful pain-wise, but made me high and I gained about 25 lbs. Then to nortriptyline, which was ok, but my neurologist recommended medical marijuana. That was about 5 years ago. It took about a year to figure myself out. Some of it was that they didn't say, or I didn't hear, that you need a consistent dose so that you have a consistent blood level. and it takes a month for it to build up. So I played around with it and didn't get much relief. But, then I got it and now it is helping well.

I do not smoke. I know many do, but my disease is pretty advanced and I need to have that consistent dose, and smoking doesn't provide that. I take pills. I am sensitive to thc, so I can't have it in the day. So, for the day I take medical cbd only, 60 mg. Then, at night, I take cbd and thc to help me get to sleep and stay asleep. dose depends on if it worked the night before and, if not, I take more.

I hope this helps you even though this is almost a year after you originally wrote.

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Replies to "Hi, @sharka. I have had sfn for about 30 years. Started meds in 2011, gabapentin, and..."

Dear @ kmom5942
Thank you so much for the info, didn't know about the consistent dose every night and or day! My doctor didn't explain the importance of this and so again thank you for this valuable information ! At the beginning I took less then I should have and not every night! Now I'll try your advice.
And can you please let me know what ratio of CBD/THC is helping at night?
I've been prescribed 10mg/10mg in one ml. It's definitely helps me with sleep!
And I will ask for CBD only for the day, seems like a good idea.
You mentioned 60mg CBD only , is that in one ml?
Thank you very much 😊!