I'm 49 and I have a high-grade myxofibrosarcoma. Found it in my thigh around Thanksgiving 2022. Diagnosed in January, and had it removed on Valentine's day, 2023. I am now finishing up 6 weeks of radiation (last dose is on Monday).

They did a ct of my lungs, and they looked clean and were able to get clean margins on surgery. However, the margins were a little narrow in the deep part of my leg, so that's obviously concerning.

Even though this is scary stuff, I feel like many things have gone my way.
1) It hasn't spread (so far)
2) It was in a place where they could get at it (not on the bone, on a nerve, nor on an artery)
3) I am close to a pretty good Cancer Center, that actually has a sarcoma team. They have all coordinated well for you my care.

So far, the worst part has been these last 2 weeks of radiation. I am really tired all the time, and my skin is just a mess. That should all heal up though.

I am a bit worried about the monitoring going forward, but not too much. The way I see it, we have a monitoring plan, so we will deal with it right away if it comes back. Plus, there's nothing I personally can do about it, so I'm not going to shut down with worry. Can't worry about a recurrence away. Just have to get on with things, and deal with it if/when it comes back.

Does anyone else find it funny how, whenever Doctors and Nurses mention sarcomas, they mention how rare it is ?
Are we like, cancer hipsters because we have a cancer you've probably never heard of? 🙂 (I'm kidding of course)

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