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Internal Body Tremors and Tinnitus

Brain & Nervous System | Last Active: Sep 23 7:41am | Replies (117)

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@casalaman

All my life I have been super healthy , not much exercise but nothing to worry about except a border high cholesterol, also super calm, worry-free. Since April 2020 I have had similar symptoms as the ones mentioned in this thread. It all started with a couple of big palpitations. I went to see the cardiologist, run several tests and results were good. He diagnosed my heart is healthy. during the following months I could felt my chest different, like my heart was pumping in a stronger way, but I learned to live with it.
Then a night on March 2021 I started to feel like I had an electric toothbrush under my calves, I thought I had done a lot of exercise or had been standing up too much, but not It continued for some days. A week later I started to see my calves moving by itself and feeling tingles in them. At that point I request an appointment with a neurologist.
Dr was very experienced, and I trusted him, he heard me out on all my symptoms and request and EMI CT Scan, blood tests and other stuff. After 2 or 3 visits my symptoms didn't change, as everyone else I started googling my symptoms and the more information I read the more I was worried about ALS or MS. The doctor finally diagnosed me with Benign Fasciculations Syndrome. All test were good, nothing to worry about.
He told me perhaps I as suffering of stress and anxiety. Obviously googling my symptoms I was a complete panic attack walking man. I asked him for a treatment but he stated I needed to address my anxiety with terapy, he also prescribed Gabapentin if I felt I had a strong episode. Never took the gabapentin, I was afraid of side effects or addiction.
It has been 2 years now, I have less fasciculations but more internal vibrations in my legs feet and abdomen. Lately a buzz in my head is bugging me 24/7. It doest not go away.
I have done anxiety therapy for a couple of months, meditation and change rutines, but still have all symptoms.
Now I am looking for a second opinoin, nevertheless finding an appointment with a good neurologist is a battle. UM just scheduled me for May 2024! lol.
Anyways, glad I could read stories from people that have similar symptoms, It helps.
Thanks.

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Update.
After 4 years of different doctors and normal tests. I ended up with a neuromuscular neurologist. She is a research expert at a well known university.
She ordered sone specific tests and among them a CK (creatine kinease) test which came up very high.
It’s funny all this time waiting to see an abnormal test to get some answers and treatment plan and finally came up and now I’m panicking. My follow up appointment is in November so I’ll have to deal with this expecting anxiety.
Have you guys had a CK test? Has it come normal?