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Anyone have/had BD-IPMN?

Pancreatic Cancer | Last Active: Aug 19, 2023 | Replies (23)

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@ken240

After unexplained weight loss at age 66, I was diagnosed thru MRI as having a 2cm MD-IPMN in 2021. I had an EUS with fine needle aspiration which came back benign. Decision was made to revisit in a year. In 2022, the cyst was 2.1 cm but duct showed increase dilation. So, I had a distal pancreatectomy, and the pathology showed cancer in the resected portion. All margins clean, no spread, stage 1. Six months of Folferinox and it still somehow spread to my liver. The IPMN was a suspect in the development of the cancer, but it was not conclusive. Everyone is different and this is a tricky cancer. Good luck and best wishes.

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Replies to "After unexplained weight loss at age 66, I was diagnosed thru MRI as having a 2cm..."

I am sorry to hear that for you. What is your treatment plan now that it has spread? Do you wish you had it resected when they found it instead of waiting a year? I do not want to wait, if I have a choice. How are you feeling now?