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Anyone else have Low Grade B Cell Nodual Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Jun 20, 2023 | Replies (10)Comment receiving replies
Yes have splenic marginal zone. Was diagnosed in January stage 4. My understanding it is somewhat rare as only 1 to 2 % of NHL get this. I have one more rounds of chemo left. Was told treatable but not curable.
Replies to "Yes have splenic marginal zone. Was diagnosed in January stage 4. My understanding it is somewhat..."
I’m glad you are almost done with chemo. How do you feel physically and mentally? Is chemo working? I assume you’re not in the US since you’re doing chemo? On another note…“Somewhat rare” is an understatement. A rare condition is defined as fewer than 200,000 pts in the US. Ultra rare is fewer than 50,000. SMZL has only about 1500 diagnosed each year! We should buy a lottery ticket!
I have it also. Just wondering why you are having chemo as I was told you are treated with antibodies. Am I ignorant and thought Rituxan was not chemo? How are you doing? What kind of chemo and how did you do on it? Side effects? Is it working for you?
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Trixie1,
I’m stage 4 too. I have not done chemo. Just Rituxan. After the first 2 treatments, my spleen has clearly shrunk and my WBC and lymphocytes have actually normalized. How is chemo working for you? Do you mind if I ask your age?
Trevor