← Return to VSD repair surgery for 3 month old baby

Discussion
lizbets (@lizbets)

VSD repair surgery for 3 month old baby

Heart & Blood Health | Last Active: Mar 3, 2018 | Replies (6)

Comment receiving replies
@colleenyoung

Welcome back @judytru. Thank you to both you and Amy for being so willing to share your experience. Sharing lived experience is so valuable, and really helps people who are walking similar roads.

Will Amy have to take Coumadin for the rest of her life or could she take a different blood thinner that isn’t affected by vitamin K?

Jump to this post


Replies to "Welcome back @judytru. Thank you to both you and Amy for being so willing to share..."

Hi Colleen,
It is my understanding that she will have to take it the rest of her life.
She is evidently not a candidate for any other type of blood thinner. It’s
such a shame because she chose the “Onx” (sp?) valve because we were told
that it was showing promise in that after a few years, it would not be
necessary to continue any blood thinner! Since she has had that valve put
in, their clinical trials have stumbled a bit in that the results of
patient subjects going off of their blood thinners were not good.
We, of course, keep up with the latest news because we never know when this
might change with new improvements and/or studies.
Judy