Hi all. I’m Jacqueline from NZ. This is my first post.
I have been struggling with various symptoms for quite some time and have just been dx with Essential Thrombocytosis associated with the MPL gene mutation. I’m 63. Actually it’s a relief to know what is wrong … I’m feeling more myself again. Obviously it’s not a great dx but not the worst it could have been either. It has come after months of high platelet counts (over 1000). Have been on low dose aspirin during that time.
I will see the haematologist in five days and indications are that I will be put on Hydroxyrea.
I was SO pleased and relieved to find this group and begin to read of familiar stories, symptoms and experiences, especially peoples’ experience of this drug.