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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
It’s day 6
Weight unc
5mg 0807 am
With 1/2 a Fresca and 10oz coffee. It’s crazy but I feel more energetic, definitely breathing better.. and I’m sleeping better..late last night I made a pizza run and me and Murphy (my dog) gorged ourselves on stuffed crust pepperoni pizza… not a normal thing but I’m 60… and I deserved it lol …which before when ever I ate like this (a full meal) my condition really flared..lunch/dinner will be leftovers.,
500mg metformin is also daily taken with meal
So far no problems
I’ll see y’all tomorrow
Dave
Replies to "It’s day 6 Weight unc 5mg 0807 am With 1/2 a Fresca and 10oz coffee. It’s..."
Sounds like day 6 went well @starbuck41. Glad to hear you have more energy, are sleeping better, and breathing better.
Enough more energy in fact to make a late night pizza run. Stuffed crust Pepperoni pizza?
Does your doctor know about your late night pizza fest, or your double bacon cheese burger/onion rings? Just wondering 🙂 I had many occasions before my surgery, when my "dietary indiscretion" got the best of me. It would just knock me for a loop, and I slowly learned I could not eat like that if I didn't want to pay for it. I was a slow learner though 😉
Maybe Murphy needs to keep a closer eye on you, and steer you to the unprocessed, lean protein, fresh fruit and vegetable section of your local grocery store!
Seriously though, glad you are tolerating the Camzyos like a champ. Besides Murphy, do you have a support person in your life that you can share with?
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Hello Dave, I’ve been reading I can’t have Fresca with camzyos because of the bad interactions with grapefruit. Has anyone talked to you about the potential effects? I got a whole list of things that contain grapefruit and told I cannot have them at all 🥲
Im excited to see how the medicine works for you. I’m hoping to have good effects too. I’m the same way if I eat much my condition comes out really bad, I’m glad you’re feeling better already!