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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Hi McKenzie-I was really scared too. All of the warnings are very scary! Knowing that we are being closely watched, doing monthly echocardiograms and doctor follow-ups helped me take the plunge. I have been on Camzyos now for 35 days and cannot believe how great I feel! I had immediate relief. It feels like a miracle. This group has really helped me. I love reading the posts from everyone. I found another site HCMA that had helpful articles and videos when I was trying to decide if I was going to start Camzyos or not. Keep us posted... 🙂
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That is amazing!! Hearing stories like this is very inspiring and makes me excited. I hope I have the same effects, I’d love to feel better and have more capacity to do things. I’m so happy camzyos is working well for you and giving you your life back. Reading all these is helping me fear and giving me the motivation to try it 🙂 it seems I’ll start with the free trial next week. I get the medicine tomorrow but have to wait for my first echo to be scheduled before I can start it. It’s good they’re monitoring people so closely, that gives me some comfort also