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The Esophageal Lichen Planus has now gone into my fingernail and toenail along with my esophagus, mouth and skin! Has anyone experienced this? My fingernail began to loosen as a new nail was beginning to grow underneath. It's so strange!! Has anyone experienced this in their nails? It's also causing nausea daily so I'm now on Zofran nausea medication! I was diagnosed in Dec. 2022! This seems to moving quickly in my body. It is extremely difficult to eat!!! I have lost 35 pounds. I'm 5'5" and now weigh 120lbs.! This disease is a shocking battle in my life! Ughhh😩
Replies to "The Esophageal Lichen Planus has now gone into my fingernail and toenail along with my esophagus,..."
Have you looked into fungal infection? It's often difficult to regulate the microbiome when there's neurology swallowing issues. Also autoimmune has been known to affect the gut microbiome.
I just learned fungus can live off ketones, although bacteria and virus ...
Please don't waste time getting this treated, and theres lots of things one can do that work together as there are some resistant fungus...
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@sadea0208 This must be so difficult! What is your doctor saying about this? Have you found the right medicines for your ELP? Here is a connection to GARD, the Genetic and Rare Disease
Group within NIH. They can help you find doctors and other resources to help you.
https://rarediseases.info.nih.gov/contact
Can you call them this week?