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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 19 hours ago | Replies (854)

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@leslie2121

Hi Susan:
I was diagnosed about 2 years ago with MGUS from routine physical- trying to explore causes of osteoporosis- also newly discovered. I’m also 64, and thought I was healthy.
I’ve taken some powerful osteoporosis medication and trying to determine if that’s why I have more fatigued or if it’s from the MGUS?
MGUS supposedly is asymptomatic but I wonder.
Thought I’d reach out.
I’m supposed to be a little above average risk but who knows about these statistics,right?
Wishing you good health- encouraging to hear you’ve been stable for 10-15 years.

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Replies to "Hi Susan: I was diagnosed about 2 years ago with MGUS from routine physical- trying to..."

I also go yearly for bloodwork. I’ve found that exercise is essential to feel my best.

Hi Leslie,
They scanned my bones last year and found lesions that turned out to be osteopenia. I’m not on any medication for it though, except increased calcium supplements. The only reason they did the bone scan was because I had lost a lot of weight without trying. That turned out to be because of another illness called exocrine pancreatic insufficiency. My next oncology appointment is in July, and I’ll be curious to hear what the results are this year. Best of luck to you!