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Body vibrations when falling asleep or waking?

Sleep Health | Last Active: 2 days ago | Replies (457)

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@rubyinparadise

Just following up on all of this. I decided not to do the heavy metals testing / detox after looking into it further. They're not really evidence-based. (The exception is if you have mercury poisoning, which is a medical emergency and requires hospitalization.). I also stopped seeing a naturopath after I learned more. Much of what they do is not evidence-based. She wanted me to spend hundreds of dollars for tests that wouldn't have been useful.

I did follow up with the second neurologist who was fantastic. Very attentive, knowledgeable, and responsive. Did several MRIs including a brain scan, nerve conduction studies (2) and muscle tests (2). Thankfully everything came back normal, despite the twitching I was experiencing getting worse throughout 2022. I was ultimately diagnosed with Benign Fasciculation Syndrome - which gets worse with stress, insomnia, and anxiety. Managing those factors keeps the twitching down to a minimum. I also started hormone replacement therapy because in the middle of last year I also entered menopause, which can exacerbate insomnia and muscle twitching.

Regarding body vibrations when falling asleep or waking: I now believe this is most likely Sleep Paralysis, which gets worse with fatigue or chronic insomnia. Just two nights ago, I had an episode of full body vibrations around 5 am, which even included auditory hallucinations and flashing lights. It was wild. The last time I experienced this was in late 2021. I am not the only one in my family that gets these sensations, just drifting off to sleep or emerging from sleep. This is the best article I have found yet on the topic. Maybe it applies to some others here. (I hadn't slept well for a few nights, and the night I experienced this, was the first night I got a deep sleep and a full 8 hours - which, ironically, makes Sleep Paralysis more likely, due to REM deprivation from the previous nights!)
https://www.verywellhealth.com/symptoms-of-sleep-paralysis-3014781
I really feel for how much fear is involved in this process and I hope and pray that everyone here gets good news, and clear answers in their search.

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Replies to "Just following up on all of this. I decided not to do the heavy metals testing..."

I had internal vibrations this morning at a level 7. They were in the pelvic area this time. I'm just at a complete loss. Talked with neurologist, no luck. I've been on HRT for 15 or more years. The only time I had hallucinations was when I took Cymbalta. I'd hear sounds like metal pipes banging together. I'd open my eyes and it'd go away. I'd close my eyes but still be awake and I'd hear them again. Also had the shock like symptoms in brain too. Documented symptoms for 2 years before a class action lawsuit against them. I got $3000. Better than nothing I guess.