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I have been diagnosed and under treatment for MDS
Blood Cancers & Disorders | Last Active: Dec 18, 2023 | Replies (16)Comment receiving replies
Hello!
59yr old male had BMT and CHEMO in 11/2021. WB and PLT seesawed for over a year b4 stabilizing. PLT yet to go higher than 148. Still going every 2 weeks for CBC and follow-up. Taking oral meds, though nothing cancer related. Was on PROMACTA pill until 2 months ago to boost PLT. We see where I stand later this week. Feeling....better than in hospital, yet not 100%. Maybe 70-80% Bit of fatigue, memory fog, lack of stamina. Doc said yet to see evidence of C. Hope it continues to trend well....for you too!
Replies to "Hello! 59yr old male had BMT and CHEMO in 11/2021. WB and PLT seesawed for over..."
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Hello--glad you're doing well. At 83, I'm too old for bone-marrow transplant, so I am on Enasidenib tablets every day and Azacitidine infusions, now every other month. But my white count was discouragingly low yesterday when I went in for a check, and I wonder if that will mean we go back to infusions every month. Mainly hoping to be able to visit my son and daughter-in-law while he is stationed in Germany--and it would be nice to be able to rehabilitate and socialize my little rescue dog. I think fatigue is just built in with this life now.