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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
So true about sleep @irishpeaks! It is elusive and rare to have a sound nights sleep anymore. And waking up tired is no way to start the day. Full of good intentions, but lacking the endurance as you say...but that's the way it is. Every day is a new day. A healthy balanced diet, exercise and sleep sounds like a prescription for life for everyone! Too bad so many us (looking at myself right now) don't subscribe to the plan. Mostly it's the eating. Exercise is easier now after open heart surgery.
How amazing that your case study is being used to help others. It is a positive by-product of your misfortune. Are you aware of any other family members with your heart disease? Was the testing done at the Mayo? Does medication help?
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My apologies for the delayed response.
I do have some uncles with the same diagnosis. But, not everyone of my dad’s siblings have it.
The testing was done by an independent lab that came recommended by Mayo. My brother had his transplant at the Mayo, so his was certainly seen by them, and they asked me to release my test results, so I absolutely agreed if it meant helping others.
I just had an ablation and stopped taking amiodarone. It will be substituted with Sotalol in a couple of weeks. I feel better, and have been working hard enough to sweat most of the day. All signs are pointing towards a successful procedure so far. If it doesn’t work, my ICD will defibrillate me, and there is nothing I hate more in this world than that. I’ve had it happen 5 times early on, and I’d be cool with it never happening again.