I appreciate the kind words. Besides a good diet, I really try to stress my sleep/downtime. I still have my strength, but my endurance took a hit when I was diagnosed. I try to get a minimum of 8 hrs of sleep, but as you probably know as well, sometimes things aren’t quite right and sleep is a rare commodity.
My brother’s diagnosis as well as mine has led to quite a bit of genetic testing which helped find the mutant gene. They now use this knowledge to help detect/diagnose this disease in other patients. The fact that I know my misfortune can help others, brings some needed positivity into the mix.
If you have any questions, feel free to ask, I will share all the info I can about my situation if it will help/educate others. That’s why I got on this site, as well as hopefully learning some valuable information myself.