Replies to @suewq How long have you been dealing with this? Is a specialist helping you? Prednisone can…

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Autoimmune Diseases | Last Active: Oct 11 2:53pm | Replies (108)

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@becsbuddy

@suewq How long have you been dealing with this? Is a specialist helping you? Prednisone can give a kick start to helping the infection/disorder. And methotrexate is for long term.
What are your specific concerns about these medications?

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Replies to "@suewq How long have you been dealing with this? Is a specialist helping you? Prednisone can..."

suewq | @suewq | May 18, 2023

I started symptoms approx 5 years ago .
However only diagnosed about 15 months ago as everything was being labelled “menopause” .
I have lost 50 pounds now ,
My concerns about the medication is really that I do not know anyone else who has been diagnosed and treated for oral , vulval and oesophageal LP , and my gastroenterologist had never heard of this , and therefore I feel that it is a stab in the dark with the treatment suggested !
I think I am coming to the conclusion that I need to start this treatment and hope it has a positive impact

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