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@talkativeinfl

Thank you so much for your input. We are working with a team at Cancer Specialists of N.E. Florida. My biggest concern is that they did NOT catch it when the tumor was confined to his pancreas. He had the major part of his pancreas removed with the exception of the head AND his spleen in 2014. Unfortunately, they did not test for PNET at that time. It was ruled a benign tumor at that time. He developed a tumor in his transverse colon which was discovered in June 2022 after I urged him to get a colonoscopy due to rapid weight loss. I had my suspicions at that time which were confirmed during a surgical procedure to remove the mass. A very astute and observant surgeon noticed spots on his abdominal wall and a funny shape to the outside of his liver that he was afraid to biopsy due to the length of time that the surgery had already taken and my husbands advanced age. He was afraid that it might cause bleeding that they couldnt control. Fast forward to present day and he now has been diagnosed with severe calcification in the arteries of his heart in 3 spots on top of the cancer. I am afraid that he wont try any other treatments and avenues, He is constantly tired and his sugar levels are all over the map. Not sure where to go from here except prayer.

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Replies to "Thank you so much for your input. We are working with a team at Cancer Specialists..."

How are you and your husband doing, @talkativeinfl?

Hello @talkativeinfl and welcome to the NET discussion group on Mayo Connect. I hope that you are getting some answers to regarding your husband's treatment plan. I can understand that this is a difficult place for you both.

On Connect, we have a discussion group specifically for caregivers. I would encourage you to look at that support group and read the posts from other caregivers and feel free to post your own concerns. As you still work full-time, it might be helpful for you to share. Here is the link to the Caregivers' Support Group,
https://connect.mayoclinic.org/group/caregivers/
@IndianaScott is a mentor of this group and was a caregiver for this wife. As you read his posts, I'm sure you will be able to understand the difficulties that caregivers face as they travel this unchartered territory.
What are your most pressing concerns right now, @talkativeinfl?