← Return to Anyone else have a Redundant / Tortuous Colon?
DiscussionAnyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: 3 hours ago | Replies (1596)Comment receiving replies
Replies to "Hello. I just had my first colonoscopy and the report on it says I have a..."
So, Cleanse More by Renew Life and Magnesium O7 are both just Magnesium Oxide. I just take the vitamin form of Magnesium Oxide, works for me and costs much less. I do also follow a vegan diet and gluten-free diet. The only gluten-free thing I eat is homemade gluten-free pumpkin muffins. I eat no bread or flour products except I use Wasa crackers to put my black bean burger on for lunch.
I was just dx with redundant tortuous colon after a colonoscopy. For the last two years and seeing 4 gastroenterologists I was told I had IBS-C and was trying to manage symptoms but not really successful. Miralax was prescribed which only caused nausea. Research has shown that Miralax is no more effective with IBS than a placebo. I also have diverticulitis.
I suffer with pain every morning and sometimes after I eat. Constipation is just a common part of my life with bloating pain, loss of appetite and weight loss. I’m down to 100 pounds. I live alone with no family around. I’m scared. I don’t know what to eat. My doc said just soft food. I’m trying to get this test Sitz beads test completed. Any advice or support is welcomed. I feel like I’m paddling away from the shore.
Have you tried abdominal massage? I do it every morning before I get out of bed. Then there are acupuncture points that you can do with belly breathing that also helps.
I have IBS-C and a severely redundant colon. Before I got on top of it, I had lost 25 lb and was technically underweight. This is what I learned works for me, through trial and error:
NOS: No grains (including no gluten) and no lactose. No legumes. Trace animal/milk fat. No beef or poultry. No fruit. No to most low and all high FODMAP foods as rated by the Monash University app. No coffee, caffeine, carbonation, most herbal teas. No to most vegetables. No sugar or most liquid natural sweeteners. No artificial sweetener. No hot pepper spice. No to large meals. No to bulking fiber supplements. No emotional stress (good emotions and bad emotions - however I am starting to see a GI psych to engage in a seven-week hypnosis program to cut the connection between my emotions and gut - they call it creating muscle memory. Recommended by my gastro doc.)
YESES: Green plantain flour, fresh green and hard plantains, pea protein isolate, potato starch, egg whites, low fat fish (tilapia, cod, shrimp, Lactaid nonfat milk, 1-2 heaping teaspoons of Lactaid cottage cheese/day. Brewers Yeast, Yeast, Chia (in moderation and well soaked), Swiss chard (no stems), tender kale (no stems), collard greens, common radish, the green part only of green onions, patty pan squash, mung bean sprouts, kobocha squash (Asian grocery), parsnip, fresh and dried herbs, olive oil (not a lot), Peppermint tea, lattes with my ingredients (I make a turmeric one), Rhubarb. Pure stevia. 1-3 raw brazil nuts. Walnuts for baking. A bit of maple syrup. Korean 100% sweet potato noodles. Maille dijon mustard, trace Mayo, A couple of olives, a few capers. Fody brand condiments, in small quanities. 0.5 teaspoon Bragg's apple cider vinegar with every meal (to give me more acid to digest my food -- a key change for me). 4-6 small meals a day. Always a warm drink or tap water to sip. My system doesn't work well without that. Mineral oil as a laxative, at bedtime, 3/8 - 1/2 teaspoon. Note: my gut is hypersensitive, so both the oil and vinegar are only needed in small quantities. Adequate sleep - lack of such disregulates my colonic processes.
End notes: I don't get constipated (incomplete evacuation) much due to the vinegar. Emotional distress (from politics for me) really sent my IBS-C into overdrive and triggered my need for a very limited diet. For brief times I was on a small dose of an anti-anxiety med that had a side effect of helping IBS-C. Then I stopped, and for some reason, some months later, I was depressive and then again on a small dose of an anti-depressant and then stopped. I have used relaxation apps and the IBS-C, doctor recommended Mahana app (the free, initial series of information) and still do its square breathing. I do stomach massage as laid out by the National Health Service of England.
IBS-C is functional. I think a redundant colon contributes to its manifestation. I can elaborate on the above if you want, in any way.
Keep trying until you find what works for you. A GI/IBS dietitian may help or the GI psych route I am now taking.
I just had this and an endoscopy done earlier in the week as part of my ongoing GI issues post reux en y surgery late '19 for bile reflux/chronic nausea. Since my surgery things have slowly gotten worse with more chronic constipation/nausea/bloating periods. The doc who did this told me I have a longer colon than normal and this could be the reason behind my symptoms now. I last had a colonoscopy done back in '19 as well and there was no mention of this. Is this just a matter of interpretation? Of course I looked this up and it can lend itself to everything I am feeling. My concern is the bad days are nor equaling the decent days which was not the case until the past 6-7 months.
I was diagnosed with tortuous colon 2 years ago. My symptoms included constipation all week then having stomach cramps, vomiting and soft stools until I was empty.
Before I knew I had tortuous colon, I was treated for SIBO, small bowel bacterial overgrowth, many times which helps the symptoms a little. I was also positive for slow stomach emptying. The doctor was also considering ibs.
After I was diagnosed with redundant colon, my doctor changed my treatment and I have had some success. (My redundancy is throughout the colon, not just the sigmoid)
I live in Israel, and I am taking a medicine that is not available in the US, called Resolor. It is a pro kinetic. Her theory is that since everything gets backed up then my body tries hard to get rid of it all with through a big cramping vomiting episode.
The resolor helps me make a few movements a week, I've had no more cramps and vomiting, stools still a little softish half the time. But at least I can feel comfortable going outside the house and not worried about a bathroom episode.
I'm also to use micro enemas if I feel it ready to go, but I am not able to go.
I had asked her about if a medicine like Resolor is available in the US, (she did some training in Boston). She said Resolor is not, but there is a medicine that is part pro kinetic and partly to absorb moisture, which is not good if you're constipated all the time.
Maybe there is something available like Resolor now in America.
Last note, the Dr asked the surgical team at the hospital she works at, Rambam, and they did not recommend surgery, saying its not guaranteed to solve all the problem and it's a big surgery and that they recommend continueing to learn to manage my condition with my doctor.
All the best!
I’ve been dealing with weight loss, diarrhea, bloating, gas feeling full and acid buildup. I had my first colonoscopy/ upper endoscopy and it revealed that I have a torturous colon.I’m currently taking anti diarrheal, acid reducer and nausea meds as needed.
I’m very interested to hear about what foods are easier with this issue/ issues. I have not had much luck with most foods except bland.
Most of you are mentioning weight loss associated with tortuous colon. I was informed that I have the condition after my third routine colonoscopy-- this time, the doctor said that everything was fine other than "the tortuous colon which you're aware of". Well.....NOPE! I had never been told I had a toruous colon, and had no idea what that even meant! So, about 20 years and 2 colonoscopies later, I'm finally told about my condition (grrrrrr!). I am always constipated and have many of the symptoms many of you have described-- except I am not losing weight- I'm having an extremely hard time getting the scale to budge. This is very disheartening because I've begun exercising regularly and eating much healthier (mainly raw diet), and since I began this regimen nearly a month ago, I have not lost an ounce. I haven't had a BM in nearly a week this time, but really having no other symptoms other than mild discomfort. But the lack of weight loss is depressing to say the least. I'm at a healthy weight (according to the BMI chart) but I would like to lose about 10 pounds to be at the weight where I feel my best. I'm 63 years old. If this is what aging is like, I don't like it one bit!!!! Has anyone else had the weight gain or weight plateau issue? I feel pretty desperate at this point. A number on the scale is instant gratification for all of my hard work- I need that little boost!
I have success with what upartist is doing - a cooked diet, high liquids, limited meats. More fluid through the "pipes" cuz they are extra long and curvy. Think of it like household plumbing. So try dumping the raw food, that is for normal guts. And I and others have shared our myriad ways of dealing with constipation, though a more liquidly, cooked diet will help your gut process your food. I sip water between meals, take magnesium and one Colace at night, and take some slippery elm inner bark powder with almost every meal. I also have a rhubarb-kiwi compote at night as it is has a stimulant effect. Experiment with what everyone uses.
I think not being able to lose weight could be something else. To lose weight, get your resting metabolic rate measured. Once you know how many calories you burn "doing nothing," you can figure out how many calories to eat and how much exercise to do to be in deficit mode and lose your weight. It's calories in and calories expended that works as a focus.
I have this condition but the only time it bothers me is once every three years when I have a colonoscopy. My prep is very extensive. Otherwise, I don’t think about it. We eat a lot of fruit and vegetables at our house and walk five miles every morning.