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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (808)
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@karukgirl

All that you mentioned sounds like very sound practice...for many of us! Keep that positive attitude up there in your high altitude!
Embracing a positive outlook has many benefits to not only our physical health, but our mental health as well. Thanks for sharing @irishpeaks, I liked your comment about being mindful of more than just your surroundings, it's not easy sometimes living with a heart condition, but you sound like you are enjoying life where you are and making the best of it. We got almost 8 inches of snow this year! Brought the whole community to a halt! We are flatlanders! I'd wager you got a bit more than that. Do you have to have regular labs to keep track of your potassium? Do you follow a specific diet for your heart block?

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Replies to "All that you mentioned sounds like very sound practice...for many of us! Keep that positive attitude..."
irishpeaks | @irishpeaks | May 14, 2023

I started out on the flatlands, so I know where you’re coming from. A place all its own.
I do get labs once every six months maximum. If I feel “off” for an extended period of time, I’ll go in sooner. My diet consists of unprocessed, low-sodium, high protein foods mostly. I have cheat days on occasion, but I try to stay pretty strict. 2000mg of sodium or less per day is the goal.
My heart condition is super hereditary (it killed my father at 31 and my brother was at the Mayo Clinic getting a full transplant when my VT began and I was eventually diagnosed with cardiomyopathy) , so I don’t have much choice.
I’ve read quite a few stories on here, great place to associate with like-minded folks. Thanks for your time, it’s always appreciated.

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