I am part of the facebook SMZL support group but not the MZL community. I'll have to look for that. It is interesting to hear how others are doing with their treatments, symptoms, etc.
I feel pretty normal and doing well. I was in Rochester a month ago and oncology said there were no lung concerns and hematology said the SMZL was gradually returning. I have the skin issue now and they have scheduled an excision procedure for the 31st. They will remove more tissue in the location of the previous biopsy. So am hoping that will go OK.
Has your hematologist suggested any treatments or is that a ways off yet?