@jinja320, I joined Connect because I wanted to meet someone else who had received a transplant due to PSC. I was monitored for nearly 8 years before I needed to be listed. I was inactivated when cholangiocarcinoma was suspected. My kidneys failed before I got a cancer free diagnosis. I was flown from ICU in Kentucky to Mayo Rochester to see the PSC specialist there. UofKy was not doing living liver transplants in 2009, so it was not an option. Then when I got to Mayo and was able to be reactivated on the transplant list, I needed a liver and a kidney, so the transplant list, living donation was not an option. I will never forget the phone call from my surgeon when she rold me that there were organs for me! I am forever grateful for the anonymous donor who gave me a new life.
I do not have Ulcerative Colitis although I have read that not everyone with PSC gets it. Did you have UC before your transplant?