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Liver transplant - Let's support each other
Transplants | Last Active: Jun 22 9:17am | Replies (1606)Comment receiving replies
@jinja320, I joined Connect because I wanted to meet someone else who had received a transplant due to PSC. I was monitored for nearly 8 years before I needed to be listed. I was inactivated when cholangiocarcinoma was suspected. My kidneys failed before I got a cancer free diagnosis. I was flown from ICU in Kentucky to Mayo Rochester to see the PSC specialist there. UofKy was not doing living liver transplants in 2009, so it was not an option. Then when I got to Mayo and was able to be reactivated on the transplant list, I needed a liver and a kidney, so the transplant list, living donation was not an option. I will never forget the phone call from my surgeon when she rold me that there were organs for me! I am forever grateful for the anonymous donor who gave me a new life.
I do not have Ulcerative Colitis although I have read that not everyone with PSC gets it. Did you have UC before your transplant?
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WOW! Truly amazing.
Happy it all worked out in your favor. I cam to this contry at 9 years old from the Island. When I got here my diagnosis was Autoimmune Hepatitis. I saw many different and things weren't getting better. A family memeber suggested Mount Sinai Hospital in Manhatten New York. After my first appointment we got the PSC diagnosis.
I developed Ulcerative Colitis some time after the first Liver transplant. It use to be just something i had and didnt bother me as much. These past year it has been kicking my butt.
However I wont allow it to get me down. I've come to far in this journey to give in.