← Return to Hailey-Hailey Disease

Discussion

Hailey-Hailey Disease

Skin Health | Last Active: May 12 12:45am | Replies (157)
Comment receiving replies
@pjorgensen22662

Your Words are of my mouth. I've had this disease since I was 15 after a rape it came upon me, I have never been completely clear spent many many years with horrible pain I'm 61 now and it seems I just can't get a break I hate my life

Jump to this post

Replies to "Your Words are of my mouth. I've had this disease since I was 15 after a..."
rnwwmn1 | @rnwwmn1 | May 14, 2023

Have you found anything to be helpful. I have gone through several phases with different treatments. I am doing okay right now.

VIEW AND REPLY
jam | @jammyrick | Jul 25, 2023

Oh how I feel that. I am so miserable all the time . I am in constant pain. Sometimes I can barely move. My employer would have fired me a long time ago if not for FMLA. I feel it will not be long if I can not get this under control I will not be able to work or I will eventually run out of FLMA and I will get fired. Not sure if it comes to this point if I am able to get disability fir this disease. I hope that at some point you will be able to find some relief.

VIEW AND REPLY