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← Return to Hailey-Hailey Disease
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Skin Health | Last Active: Sep 3 7:58pm | Replies (169)
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Your Words are of my mouth. I've had this disease since I was 15 after a rape it came upon me, I have never been completely clear spent many many years with horrible pain I'm 61 now and it seems I just can't get a break I hate my life
Replies to "Your Words are of my mouth. I've had this disease since I was 15 after a..."
Oh how I feel that. I am so miserable all the time . I am in constant pain. Sometimes I can barely move. My employer would have fired me a long time ago if not for FMLA. I feel it will not be long if I can not get this under control I will not be able to work or I will eventually run out of FLMA and I will get fired. Not sure if it comes to this point if I am able to get disability fir this disease. I hope that at some point you will be able to find some relief.
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Have you found anything to be helpful. I have gone through several phases with different treatments. I am doing okay right now.