Questions to ask with a new Bronchiectasis diagnosis

Posted by wsbme74 @wsbme74, May 12, 2023

Hello. I was diagnosed with bronchiectasis about a month ago (lifelong mild-moderate asthma) and have been trying to do a deep dive into literature - and awesome, informed, support groups like this one!

I am curious about those with the diagnosis in terms of "What would you ask a doctor at your first specialist visit?" (I am traveling to Boston next week), and "What do you wish you had known/asked and didn't?" We will be doing the standard testing (sweat test has been done; some blood work; and I am still trying to get a decent mucus sample).
So, I guess I am looking for a bit of a Brainstorming session! I have a list of bulletpointed questions to ask to be organized in the short time that insurance seems to demand of medical visits. Thanks!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Sue, Volunteer Mentor | @sueinmn | May 12, 2023

@wsbme74 The question of what to ask is certainly a common one - I wish I had known about Connect when I was diagnosed!
The American Lung Association has just what you need:
https://www.lung.org/lung-health-diseases/lung-disease-lookup/bronchiectasis/questions-to-ask-your-doctor
What I do is take the list and customize it for my needs - yesterday I met a new primary provider, and she was happy I had it.
Sue