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Trigeminal numbness

Neuropathy | Last Active: May 14, 2023 | Replies (53)

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@janetleela

This sounds so similar to what I've been dealing with since February of 2020: idiopathic tingling/numbness, and sometimes a sort of sore or tight sensation, over my right cheek and the right half of my tongue. I've had two MRIs at this point, bloodwork, and a CT scan of neck/head, and still have no idea what's going on. I also opted to not take gabapentin since it's not painful, just, unsettling and strange. Have you made any progress in your search for answers?

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Replies to "This sounds so similar to what I've been dealing with since February of 2020: idiopathic tingling/numbness,..."

Welcome @janetleela, I'm not sure if @katiec is following Connect since she has only posted once which was in 2021. @jfn, @sdgoddard10 and others may have some suggestions or experience to share with you.

It sounds like nothing was learned with all of the testing you have had so far. Have you thought about seeing a neurologist or other specialist?

I did not have any numbness or tingling with Trigeminal Neuralgia. The pain was severe and non stop and I could not chew any food. I ate only liquids or very soft foods. The pain made me cry. Pain pills did not help it just took weeks to get better. Pain was in my jaw and teeth running up to my eye. I hope you find relief soon.