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Liver transplant - Let's support each other
Transplants | Last Active: Dec 15, 2024 | Replies (1623)Comment receiving replies
Thank you for the Welcome!
My first surgey was done by a living donor. My father gave me a piece of his liver and i was blessed that have that for 20 years. My second surgery i got both Liver and and Kidney from a cousin of who passed away. It was a true miracle how fast the second surgery happened. With in a week or two of being told I needed a transplant I got a call one day that my cousin's parents wanted to donate to me.
I was also diagnosed with PSC. Its wonderful to meet someone else with the same diagnosis. I'm glad things have been working well for you. I pray it continues.
Jinja
Replies to "Thank you for the Welcome! My first surgey was done by a living donor. My father..."
@arqui02000, If you click on the blue In reply tp at the beginning of this message, you can read about @jinja320 and her 2nd liver transplant experience.
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@jinja320, I joined Connect because I wanted to meet someone else who had received a transplant due to PSC. I was monitored for nearly 8 years before I needed to be listed. I was inactivated when cholangiocarcinoma was suspected. My kidneys failed before I got a cancer free diagnosis. I was flown from ICU in Kentucky to Mayo Rochester to see the PSC specialist there. UofKy was not doing living liver transplants in 2009, so it was not an option. Then when I got to Mayo and was able to be reactivated on the transplant list, I needed a liver and a kidney, so the transplant list, living donation was not an option. I will never forget the phone call from my surgeon when she rold me that there were organs for me! I am forever grateful for the anonymous donor who gave me a new life.
I do not have Ulcerative Colitis although I have read that not everyone with PSC gets it. Did you have UC before your transplant?