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Anyone have Schwannomatosis? (Neurofibromatosis type 1 (NF1)

Spine Health | Last Active: May 13, 2023 | Replies (43)
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@maryluise2

Look NF1 the first symptom is that it Six or more café-au-lait spots on the skin and it also cause tumors and i had a brain tumor but i removed it when i was 18 years now i am 21. So I recommend that u go to a doctor asap because he will be more beneficial for u

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Replies to "Look NF1 the first symptom is that it Six or more café-au-lait spots on the skin..."
adronmoore | @adronmoore | May 12, 2023

I've seen a lot of doctors . I'm now seeing a neurosurgeon and a plastic surgeon. I also just had EMG testing.

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