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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)
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@reneemp

When I was dx with smzl the doctor said he thought I had it for at least 5 years. So then the skin cancer would be right about the same time. Who really knows though.

I’m doing good in my watch and wait. Symptoms are slowing creeping in more regularly- fatigue, sweats and spleen pain.

Are you aware of the Facebook group? Search SMZL Support Group and also MZL Community - Learning & Research.

How are you doing?

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Replies to "When I was dx with smzl the doctor said he thought I had it for at..."
stankent | @stanleykent | May 14, 2023

I am part of the facebook SMZL support group but not the MZL community. I'll have to look for that. It is interesting to hear how others are doing with their treatments, symptoms, etc.
I feel pretty normal and doing well. I was in Rochester a month ago and oncology said there were no lung concerns and hematology said the SMZL was gradually returning. I have the skin issue now and they have scheduled an excision procedure for the 31st. They will remove more tissue in the location of the previous biopsy. So am hoping that will go OK.
Has your hematologist suggested any treatments or is that a ways off yet?

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