← Return to Antisynthetase Syndrome: Anyone else?

Discussion

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Sep 8 2:29pm | Replies (71)
Comment receiving replies
@kendrakh

I was diagnosed w ASS in April of 2020. In June of 2022 I was diagnosed with ASS related ILD. Every treatment I've tried I end up having a reaction to. I would love to be able to get into the Mayo Clinic hoping more is known about this rare disease.

Jump to this post

Replies to "I was diagnosed w ASS in April of 2020. In June of 2022 I was diagnosed..."
Becky, Volunteer Mentor | @becsbuddy | May 10, 2023

@kendrakh It must be so difficult to react badly to every treatment. I understand your desire to go to Mayo Clinic, unfortunately, it’ not always possible. Mayo does have a network of hospitals around the country, called the Mayo Clinic Care Network. The link is:
https://mayoclinic.org/about-mayo-clinic/care-network/members. These hospitals have access to all the knowledge that Mayo Clinic.
Can you try to contact this group and then let me know what you learn?

VIEW AND REPLY