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Liver transplant - Let's support each other
Transplants | Last Active: Jun 22 9:17am | Replies (1606)Comment receiving replies
New to Mayo Connect, My therapist thought it would be great to talk others who have been in my situation. I've had two liver transplant, the first i had at 17 years old and im approaching my 3 years anniversary of the second transplant. I had a kidney transplant the same time of the second surgery( during Covid). I couldn't remember what recovery was like after my first surgery but this second time around was an experience. The weight gain form being home for 6months was not fun, im still strugging to maintain a size im comfortable with but with prednisone nothing is certain.
Lets talks i'd be happy to share my stories with anyone who are awaiting surgery or post.
Replies to "New to Mayo Connect, My therapist thought it would be great to talk others who have..."
Hello
You survived two transplants and that is just amazing.
Its not fun, the processes one has to go through after surgery.
It is very regimental and to the point and no deviations.
I had my transplant almost 4 years and 4 months ago. I am still around not sure how long, but I dont think about it. Just take one day at a time and be thankful God let us to keep breathing.
You may want to start a strict workout program to keep your health and weight in good shape. Trust me it is really tough to lose weight.
But you will be ok.
Take care and God Bless
Connect
Hi, @jinja320! Welcome to Connect. I am happy to meet you and excited to be the first one to say "Hello" to another liver and kidney recipient!
I am a liver and kidney transplant recipient. I got both organs in a simultaneous transplant surgery in 2009 from an anonymous deceased donor. I had Primary Sclerosing Cholangitis (PSC) and I was 60. I read that you were 17 for your 1st transplant. I must say that you are an inspiration to me - because you are willing to share your story which gives hope to others who are undergoing their own transplant journey.
@jinja320, As a member on Connect, you are able to join into any discussion, anytime with a comment or a question, or an emotion (Like, Helpful, Hug) You mentioned a 3 year anniversary coming soon. Here is a group that I thought to share with you.
- Happy "Transplantiversary"!
https://connect.mayoclinic.org/discussion/happy-transplantiversary/
Did you have a living or deceased donor(s)?
Are you comfortable to share a little about the reason for the 2nd transplant?