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New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

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@yvonne55

I went to my pulmonologist today and he said my lung function test was good and my 6 minute walk test was good however the CT scan I had last week compared to the one I had 3 months ago was still basically the same. The ground glass opacities are much less and he is pretty sure that it was ours due to aspiration pneumonia from GERD. He said the scarring has not changed. Now I don't know if scarring gets better with lungs ? Or stays the same or gets worse. But he said it's the same as in the last CT. Having said that he has decided to err on the side of caution and is sending me to a lung scarring specialist. And he wants my lung function test and CT repeated in 6 months. Is anyone familiar with lung scarring and does it generally get better? I think just the thought of going to another specialist, when I thought this nightmare was over, of course worries me. I'd never even heard of a lung scarring specialist. Anyone? Thanks in advance 🙂

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Replies to "I went to my pulmonologist today and he said my lung function test was good and..."

Hi Yvonne - I'm glad to hear the doctor is happy with your progress - I bet it's a big relief for you.

You asked "I'd never even heard of a lung scarring specialist. Anyone? " Well, if you had asked my Dad, he would have said there's a specialist for everything. At one point he asked the doctor if he had to see a different doctor for his left shoulder than the right one. I would say it's not exactly a separate specialty, just someone he knows with more experience than he has in evaluating scarring. I think he may be concerned because you had such a difficult case, and wants to make sure he isn't missing anything.
As to whether scars change, my scarring after an infection never went away altogether, although the nodules eventually disappeared. On the other hand, after Covid my daughter's scarring has gotten better.

I don't think this is cause for anxiety - more like cause for celebration because your doc is so thorough!
Sue