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Clifford do you have any other health issues? I’m so sorry you aren’t getting the answers about your symptoms. It’s frustrating.
Have you a good hematologist/oncologist? Maybe a second opinion?
Do they do routine blood analysis to check to see if your MGUS is progressing?
I’m so sorry. Nothing worse than feeling sick unless it is feeling sick and having no answers as to why.
My MGUS was diagnosed for the first time in August 2021. If I felt bad… Which I don’t… I would consider going to the Mayo Clinic. I’m in Arkansas and not close to Phoenix or Rochester, but it would be worth it to get a second opinion. I like my hematologist/oncologist very much and we are watching my numbers. We do bloodwork every 3 to 4 months. I do have this pesky neuropathy in my feet, which somewhat limits my level of activity. I try to just carry on, ignoring my poor feet. They complain a lot but 🤷🏼♀️
Check back in and let us know how you are doing.
Patty
Replies to "Clifford do you have any other health issues? I’m so sorry you aren’t getting the answers..."
I'm starting to have spells my blood sugar gets really low and I'm not diabetic.
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I have mostly just shortness of breath and neuropathy. They check my blood every month now. I have a very high lamba light chain. I ve had a fat pad biopsy it's just that my hematologist thinks that is golden. And I've read it's has its inaccuracy.