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Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Blood Cancers & Disorders | Last Active: May 10, 2023 | Replies (35)
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@remo1110

I too take Hydrea 500mg. I know it makes me tired . fortunately i'm retired so I can sleep late. I did tell my doctor he said i was tired due to my age. Im not accepting that answer why wasn't I tired before I took the Hydrea.

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beebo | @beebo | May 10, 2023

I’ve been on HU going on two years. Right now I’m taking 500 mg 4x/week. I’m not really noticing any bad reactions to it so far. My doctor adjusts the dosage based on hemoglobin count and platelet levels. If either goes too high for a couple of months ( I get a CBC monthly) he either adjusts the dosage or schedules a phlebotomy. I’m only doing those every 4 or 5 months now, was every two weeks when I first started. So I’m thinking that the HU is pretty effective. Only issue I ever had was after I had dropped a HU capsule in my water glass and left it there awhile before taking it. Had major itching for a day following that.

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