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DiscussionInclusion Body Myositis: I'd like to talk with others
Autoimmune Diseases | Last Active: Oct 20, 2023 | Replies (97)Comment receiving replies
Replies to "Hi. I’ve had problems with my muscles for a few years My muscles were just fading..."
Welcome @billmixon99, Hoping you find some answers soon for your diagnosis. It's frustrating having gone to so many doctor and not having any answers. You mentioned having very high creatinine levels for years. Here's some information that might be helpful in your search for answers.
--- What to know about high creatinine levels: https://www.medicalnewstoday.com/articles/when-to-worry-about-creatinine-levels.
Have any of your doctors discussed any concerns for the high creatinine levels with you?