Intercostal Neuralgia
For the past 3 years I've had pain, basically under my upper rib cage & breastbone area & around to my back. It's very hard to explain. It started out hurting when I bent over & lifted something heavy. I went to a Dr & ended up having every heart test you can imagine. Then to the GI, where I had everything there tested. I've had blood work & chest xray. No one could seem to explain it. This year it's been worse, doesn't take much to make it hurt. I went to the pain Dr & had him look at my back MRIs to see if there was anything there causing it. When I explained everything to him, he reached around me & started pressing on certain areas of my ribs, some were very painful. He's of the opinion I have Intercostal Neuralgia. He suggested physical therapy & gabapentin. Since I was also going to PT for knee replacement, I took my order to them & asked what they could do. My therapist said there really isn't any special treatment for it, but he did have a few exercises that might help. Those exercises certainly pull on those muscles, but I'm not sure it's helping. So far, I don't see any benefits from the gabapentin, except weird dreams at night & it's been over 2 weeks. Has anyone else had any experience with this. I really don't know what else to do
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@gunnera, your story is most welcome. I appreciate your adding it. It's another testament to the need of being one's own advocate and working with your doctors when something isn't right.
I learned over time to accept the constant pain. I became upset/angered that no Dr would help me. I described the pain as a constant phantom pain that hurt worst when I did heavier breathing. But now I am under pain management, that creates issues itself. However, I am thankful each day that I am alive, breathing, and kicking.
@karenann01: May I ask how you are doing regarding Gabapentin and your pain?
I'm still taking 600mg at night. Usually wake up with pain, I think bc I sleep on my stomach. It goes away quickly. Overall, I'm doing ok unless I lift things or do stretching. It seems to be mostly on my right side & around into my back. We've been traveling, so haven't seen a DR for awhile. I'm going to make an appointment for this summer for a pain Dr. when I'm in 1 place for awhile. Hopefully, he/she'll be at least willing to continue the gabapentin, unless they have a better idea. What are you doing for yours.
I am still taking 900mg (3 x 300mg) per day. Neurologist wanted to increase the dosage until I mentioned the side effect of brain fog at times. I'm getting used to it, but I know that the dosage needs to increase; my left side of my chest still hurts more than I would like.
My Dr had me on 900 mg, one in the morning & 2 at night. I didn't really notice any difference with the 1 in the morning, so I quit taking it. does your chest hurt all the time or do certain activities cause it to hurt. I have also found being on my feet for a long period of time will also cause it to hurt.
@1942marilyne Thanks for the reply. I still have pain now and then. I have not had a screen since but I need to. KLH
I have multiple myeloma resulting in T6 and T7 suffering compression fractures. I now have intercostal neuropathy due to the vertebrae pressing on the nerve. The pain and discomfort is hard to live with.
The hardest thing for me was finding a Dr who actually acknowledged my pain & diagnosed it. I finally found that person about a year ago. Hardly anyone really knows what it is. I even talked to a physical therapist about it. He didn't really have specific exercises, but gave me a few to try. They just aggravated it. Since taking the gabapentin for almost a year now, my pain is greatly reduced. It used to get so bad, it would sometimes take my breath away. I haven't had that in a long time. I've lived with this for over 4 years. I hope your Dr finds a medication that will help you.
Hi,
I am sorry that you are in pain for so long and haven't found a good Dr yet for treatment.
I happen to stumble upon this post by chance and couldn't help but wonder how many more patients still need to suffer.
I was clueless and had no diagnosis done and was suffering from debilitating pain for close to 2 years post a major car accident. Due to pandemic I couldn't get timely treatment in the country I live currently however luckily I could fly to India for better and faster treatment.
In India , I was diagnosed with intercostal neuralgia and was treated with nerve blocks , lidiacaine patch and duvanta (previously I was on gabapentin, pregablin, amitriptyline but all had bad side effects on me). This really put me on a path to recovery finally.
Its been over 1.5 years now since the nerve blocks, and I have had significant and dramatic improvement in my condition.
In the country I live currently, unfortunately its not a treatment easily provided due to different protocol and restrictions however the pain specialist here also have agreed I did the right thing by choosing to help myself by privately funding my treatment in India.
I am not sure where in the world you are located, however I would suggest you to visit a pain specialist or a neurologist to check if these can be an option for you.
Good luck with your treatment and I really wish that you come out of this pain cycle soon.