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Diagnosed with CUTANEOUS anaplastic large cell lymphoma?

Blood Cancers & Disorders | Last Active: May 9, 2023 | Replies (9)
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@shari715

I was recently diagnosed with Cutaneous T-Cell lymphoma. I had the necessary blood work and a PET. Fortunately, the disease is localized to the skin at this time. UV light is the treatment of choice. I cannot see doctors at Mayo because my insurance does not cover that site. After doing tons of research I am confident with the doctors - dermatologist and oncologist treating me.

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Replies to "I was recently diagnosed with Cutaneous T-Cell lymphoma. I had the necessary blood work and a..."
Lori, Volunteer Mentor | @loribmt | May 9, 2023

Thank you for joining the conversation, @shari715. I’m happy to hear you’re having positive results with the UV light therapy. It’s frustrating when insurance doesn’t cover in different medical facilities. And often, Mayo will defer treatment to local oncologists if it’s a condition that can receive the same beneficial treatments near home, saving time and costly travel/lodging expenses.

@grysel25 lives in Mexico and has yet another variant of cutaneous T-cell lymphoma, ALCL and will possibly require some surgery. She’s a bit concerned for her diagnosis and also quality of care. I know she has a doctor’s appointment coming up this week so hopefully she’ll get some good news. It would be wonderful if she could avoid surgery or chemo and have the option of UV light!

How long will your treatments continue? Is this ongoing or are you in remission?

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