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Small fiber neuropathy and muscle tightness

Neuropathy | Last Active: Jan 27 12:16pm | Replies (34)
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@bailey11

Hello Ed-
I feel for you! I’ve been struggling w small fiber neuropathy w autonomic dysfunction for many years but last 2 have been the worst.
(So far no etiology; not diabetic ; genetic or autoimmune) possibly genetic but no gene mutations were found yet.
I get tightness in my stomach and abdomen and chest. It feels like someone is tightening a rope inside me. It impacts my breathing although pulse ox is normal. I take Metropolol to keep heart rate normal + LDN at night for pain. I try my best to keep distracted and ignore these symptoms.

Bless you!
Eileen

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Replies to "Hello Ed- I feel for you! I’ve been struggling w small fiber neuropathy w autonomic dysfunction..."
sharonfur | @sharonfur | May 9, 2023

What is LDN...Low Dose Naxetrone or something and does it help? Curious?

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amberrose | @amberrose | May 9, 2023

Eileen... I was shocked to find your description of your "tightness in your stomach, abdomen and chest!" I've been searching for information on the internet as well as under the care of various specialists who cannot determine what is causing the symptoms! Have you noticed if your tightness and breathing difficulties are exercise induced?
Do you experience any gait irregularities like a feeling of walking through cement?
I have four autoimmune disorders and many symptoms overlap. Do your docs believe your symptoms are related to the small fiber neuropathy ? I would really appreciate any info you can provide! My lungs have passed all testing as well! Hope to hear from you soon as I have an appointment with my Neurologist in Denver next week and would really like to bring some new info to him. Abdominal Destonia is his diagnosis for me...

Thank you so much...at least I realize I'm not the only one!!!!! Nance

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