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DiscussionHCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Replies to "Hello Colleen. Thank you for the welcome. In 2009 and 2019 I had heart ablations for..."
Hello @john67 , you came to the right place if you are looking for information about Hypertrophic Cardiomyopathy. It sounds like your cardiologist has enough information to at least give you three options, as you say. I'm glad your cardiologist recommended a Center of Excellence for treatment. This disease needs top of the line medical input and if necessary the best surgical team available. It is overwhelming at the beginning, I feel, because it seems most people with this had no idea this was lurking inside their heart. They were mostly fine, bumping along with a garden variety heart murmur or some SVTs and then it seems like all of a sudden you notice you can't breathe, your heart pounds like a turbo charged diesel Cummins motor, and even simple chores make you short of breath. You get dizzy, feel fatigued and have brain fog. I kept telling myself I get dumber everyday! I don't know about you but I just sluffed it off to generalized aging. It came on gradually but seemed like it just got worse really fast. Each person is different, of course, but a lot of us share the same symptoms too. Then there is the whole genetic factor. Where did it come from, could any siblings or children have it too? Have they told you if yours is obstructed? If you don't mind sharing, what were the three options you were given? On Mayo Connect, you never know who may see your post and be helped by your story. Keep reading and researching. You are your own best advocate!