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Myelodysplastic Syndrome (MDS): how to increase red blood cells?
Blood Cancers & Disorders | Last Active: Sep 1 6:47pm | Replies (101)Comment receiving replies
Dropping 8.1 to 7.7 isn’t too drastic in itself, But having that low level of hemoglobin definitely has you feeling that fatigue and lack of oxygen throughout your body.
There’s not much you can do right now except listen to your body and take rests as needed. I can truly appreciate the frustration in having to be sidelined a little more when you’ve been very active all your life!
But seeing that you haven’t had consistent treatment since your first injections almost 5 months ago, it’s not a fair test. So you may be surprised when you start the medication again on a more consistent level. The red blood count may level out and start reversing. 😉
Just curious if you were spending the winter down south? When I required treatment my nurse coordinator at Mayo set up appointments for me in the infusion center of a hospital in the same city where we stayed in Florida. Would this be an option for you in the future?
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Yes we have a condo in fort myers. When I left my dr said if I started feeling bad to call and he’d figure out some thing. He thought I’d be ok till April since I had had no problem until a month before when the count dropped to 8,9. By the time I got a blood test in late March and found the number was 8.1 it was almost time to come home to my appt. I’m glad to know there’s way to manage while away from home. Without something like you mention, it’s a slow slog to get through the system in Fl.
Thank you!