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← Return to Myelodysplastic Syndrome (MDS): how to increase red blood cells?
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Myelodysplastic Syndrome (MDS): how to increase red blood cells?
Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (45)Comment receiving replies
I had 3 injections nov/Dec of 22, then paused without knowing if blood count had improved or not bc of being out of town till April. I’ve had 3 since I got back; so far the rbc has declined from 8.1 to 7.9 to 7.7.
I don’t feel bad but I find myself short of breathe and not as coordinated as I’m accustomed to.
Replies to "I had 3 injections nov/Dec of 22, then paused without knowing if blood count had improved..."
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Dropping 8.1 to 7.7 isn’t too drastic in itself, But having that low level of hemoglobin definitely has you feeling that fatigue and lack of oxygen throughout your body.
There’s not much you can do right now except listen to your body and take rests as needed. I can truly appreciate the frustration in having to be sidelined a little more when you’ve been very active all your life!
But seeing that you haven’t had consistent treatment since your first injections almost 5 months ago, it’s not a fair test. So you may be surprised when you start the medication again on a more consistent level. The red blood count may level out and start reversing. 😉
Just curious if you were spending the winter down south? When I required treatment my nurse coordinator at Mayo set up appointments for me in the infusion center of a hospital in the same city where we stayed in Florida. Would this be an option for you in the future?