← Return to Diagnosed with CUTANEOUS anaplastic large cell lymphoma?

Discussion

Diagnosed with CUTANEOUS anaplastic large cell lymphoma?

Blood Cancers & Disorders | Last Active: May 9, 2023 | Replies (9)
Comment receiving replies
@grysel25

Thanks for the link.

I was diagnosticaded recently. I have no implants. On febreruary I
discovered a lession on the neeple zone. I had no pain or other symptomes;
only a big lost of hair AND a big ojeras.

During the ultrasonic they saw that one of the ganglios was bigger than
the otherd. Theymade a biopsy of the lesión and the ganglio.

They made some pathologics analisis during 2 months. Because the first
result was a papulosis but with some contradictions. They practiced more
analisis and now the finally result is Cutaneous anaplastic large cell
lymphoma.

Beside this deasese Is very strange I have many questions about how to
aboard my treatment. I will appreciate if you Know about someone with
experience that could help me.

Best regards

El dom., 7 de mayo de 2023 7:54 a. m., Mayo Clinic Connect escribió:

>

Jump to this post

Replies to "Thanks for the link. I was diagnosticaded recently. I have no implants. On febreruary I discovered..."
Lori, Volunteer Mentor | @loribmt | May 8, 2023

Hello @grysel25, I haven’t been able to find anyone in the forum who has the same diagnosis. I’m hoping some new member will see this and be able to join in to share their experience with you.

From what I’m reading it does sound as though your current oncology team came up with a firm diagnosis. When dealing with a rare cancer, it can take several weeks or months to narrow down the possibilities. So don’t be too quick to dismiss your current team of doctors.
I think you have an appointment this week with your doctor. It will be good to hear what they have to say about treatment. Maybe you’ll feel more comfortable with the plan.

However, it never hurts to get a second opinion when possible so I gave you the information for Mayo Phoenix in the previous reply. Usually you’ll hear back from them within 3-5 business days.

But I’m here for you anytime. When you see your doctor and you get a treatment plan, we can talk more then, ok?

VIEW AND REPLY