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Severe leg vibrations constantly
I had Covid and tested positive for 19 days. Not long after I started to notice my hair falling out & fatigue. Now it's been a few months and while I have a previous rare disease called CIDP (like M.S.) and have been taking IVIG infusions bi-monthly for years, about 3 weeks ago my legs began vibrating like a constant electrical sensation or cell phone. It wakes me all night and I am just about ready to lose it. I ask my neurologist and get told it's neuropathy...but its so different than what I have experienced for years. The only options I have are anxiety meds and gabapentin that put me to sleep. I have no life because I end up sleeping all day. Any help/advice would be greatly appreciated!
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Sorry for your stress. I had COVID hair loss and internal vibration in my chest. After ruling out a heart condition I have been living with it. Hair is starting to grow back. There's another thread on internal vibrations and a Mayo doc has a YouTube video about it. It's a central nervous system syndrome, sorry I don't have the link on hand, but it's on the Mayo clinic website. Good luck.
I just posted about my legs hurting so bad and feeling weak. My toes turn purple sometimes red and get hot. Is this neuropathy? I feel for all of us and wish we could all get better or catch a break.
My legs and toes hurt now almost every day and I feel stiffness in my legs as well. Don’t know what to do
Hi jaymiier,
I've had/have the same symptoms as you for 18+ months and will share a few things that might help. I'm very sorry you are also having this awful experience.
-For falling asleep, I like using edibles or ambien. Even if you can't fall asleep edibles may help you relax and make the shaking more bearable.
-Waking up tired and/or shaking is very frustrating but trying to fall back asleep is mostly ineffective for me. Naps can be good. Or sometimes I will try to get myself extra tired/fatigued and have a satisfying sleep from that.
-My long covid symptoms seem to follow linear relapse/remission cycles so even if its bad now, you can expect occasional relief. Even if its only 1 "good" month in 6.
-Gabapentin is a standard prescription for tremors but seemingly ineffective for 'long covid tremors' - if it isnt working for you I would consider dropping it.
-Treating new long covid symptoms while having CIDP all ready sounds extremely challenging. It may be beneficial to review your CIDP treatment.
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1 ReactionYou should see a doctor or neurologist about this if you haven't. Changing colors is a lot more concerning than just abnormal pain/sensations.
Edit: saw your other thread - did your doctor order some blood tests at least? There are many possible causes for your symptoms besides Long Covid, and it seems like you should have been referred to a neurologist.
Id be interested if you have any recent updates as to how you are getting on. I have had CIDP since 2005 and was almost on top of it, however i have had covid 2 times now and although very mild, i have had dreadful tremors and fatigue since the second one. What can you take to reduce tremors (the usual nerve meds like amitriptyline just don't do anything)
I am planning on going to Mayo end of Feb to get a check up to see what they can recommend
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