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Has anyone heard of VEXAS syndrome?

Blood Cancers & Disorders | Last Active: May 4 11:09am | Replies (43)
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@mayo2290

Hello, so far I am on five mg. of prednisone and 400 mg of Hydroxychloroquine . I was turned down from my insurance for Jakafi. People tell me that it works great, but very expensive.Don’t know what the next step is. Thanks for getting back to me. Joe

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Replies to "Hello, so far I am on five mg. of prednisone and 400 mg of Hydroxychloroquine ...."
Becky, Volunteer Mentor | @becsbuddy | May 6, 2023

@mayo2020. When i was prescribed Rituxan for my autoimmune disease, my health insurance said it was too expensive and they wouldn’t pay. Then the doctor called the drug company and they finally said that their company Foundation would cover the cost. Thank heavens!
Can you ask your doctor about pleading your case?

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