Sorry for the lagging reply. It has been a rollercoaster ride. Diagnosed over 2 years ago. Have had 3 MRIs. Showed 11X6mm at first, then 11X7 6 months later. Latest MRI shows still there and no demensions or size. Ask neuro what size, all she gave me was 11mm. MRI report does not give size. I have had symptoms for over a year now. No longer will drive, vision often is blurry. Total hearing loss in left ear. I am in despair. Neuros say I'm fine and don't have symptoms from meningioma, won't do anything about it. Probably won't due to my age. I have depersonalization because of stress of waking up everyday not knowing what the day will bring. Now trying to get appt. with mental health . Pretty much house bound and my poor hubby has to do it all!
I have been diagnosed with either a calcified meningioma or a calcified trigeminal schwannoma …different location though, but I’m also interested in hearing what others have to say about a calcified tumor and the growth potential. I’m also watch and wait. I go next month again. Mine is shy of 3cm 🫣, clear borders, but tricky tricky location. I also am avoiding CT scan for fear of more radiation and I’m also interested in hearing what others have to say re: gamma knife to a calcified tumor. Radiation has given me a lot of anxiety since my diagnosis.
I have been diagnosed with either a calcified meningioma or a calcified trigeminal schwannoma …different location though, but I’m also interested in hearing what others have to say about a calcified tumor and the growth potential. I’m also watch and wait. I go next month again. Mine is shy of 3cm 🫣, clear borders, but tricky tricky location. I also am avoiding CT scan for fear of more radiation and I’m also interested in hearing what others have to say re: gamma knife to a calcified tumor. Radiation has given me a lot of anxiety since my diagnosis.
Thank you for the above. I am a candidate for gamma knife, yes. What’s causing anxiety from it is that it is radiation. Radiation can cause the tumor to change to a malignancy, albeit small chance, but still. It’s radiation. I’m trying to limit my exposure to it during my day to day. Close to impossible but, no more ear buds for me. X-rays at dental appts, unless if I absolutely NEED them, I opt out. Etc.
I also have anxiety that if I just do radiation, I still have my tumor. And I will still have my anxiety with it acting up etc on a day to day. Most neurosurgeons I see say gamma knife is the best plan for me, but one neurosurgeon said there is 1 neurosurgeon he would recommend if I were to get it removed, as this neurosurgeon operates in that area all the time. So, I’m very interested to get this out of me, but of course, it scares the living daylights out of me as well.
I was recently diagnosed with a heavily calcified lesion on the extra axial left frontal region. My dr has just ordered a ct scan now after the mri showing the calcified lesion. I also had a childhood head injury to the left side of skull above the eye. Was hit with a red paver brick. Punctured the head, got stitches no xrays and sent home. Now 45 yrs later had a mri done and this heavily calcified lesion has shown up.
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Sorry for the lagging reply. It has been a rollercoaster ride. Diagnosed over 2 years ago. Have had 3 MRIs. Showed 11X6mm at first, then 11X7 6 months later. Latest MRI shows still there and no demensions or size. Ask neuro what size, all she gave me was 11mm. MRI report does not give size. I have had symptoms for over a year now. No longer will drive, vision often is blurry. Total hearing loss in left ear. I am in despair. Neuros say I'm fine and don't have symptoms from meningioma, won't do anything about it. Probably won't due to my age. I have depersonalization because of stress of waking up everyday not knowing what the day will bring. Now trying to get appt. with mental health . Pretty much house bound and my poor hubby has to do it all!
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2 ReactionsI have been diagnosed with either a calcified meningioma or a calcified trigeminal schwannoma …different location though, but I’m also interested in hearing what others have to say about a calcified tumor and the growth potential. I’m also watch and wait. I go next month again. Mine is shy of 3cm 🫣, clear borders, but tricky tricky location. I also am avoiding CT scan for fear of more radiation and I’m also interested in hearing what others have to say re: gamma knife to a calcified tumor. Radiation has given me a lot of anxiety since my diagnosis.
@courtneyizquierdo, you might be interested in these related discussions:
- Gamma knife for meningiomas https://connect.mayoclinic.org/discussion/gamma-knife-for-meningiomas/
- Meningiomas. Gamma knife or Cyber Knife. Which is more effective? https://connect.mayoclinic.org/discussion/meningeomas-gamma-knife-or-cyber-knife-which-is-more-effective/
Are you a candidate for gamma knife? What aspect of treatment is causing anxiety for you?
Thank you for the above. I am a candidate for gamma knife, yes. What’s causing anxiety from it is that it is radiation. Radiation can cause the tumor to change to a malignancy, albeit small chance, but still. It’s radiation. I’m trying to limit my exposure to it during my day to day. Close to impossible but, no more ear buds for me. X-rays at dental appts, unless if I absolutely NEED them, I opt out. Etc.
I also have anxiety that if I just do radiation, I still have my tumor. And I will still have my anxiety with it acting up etc on a day to day. Most neurosurgeons I see say gamma knife is the best plan for me, but one neurosurgeon said there is 1 neurosurgeon he would recommend if I were to get it removed, as this neurosurgeon operates in that area all the time. So, I’m very interested to get this out of me, but of course, it scares the living daylights out of me as well.
-
Like -
Helpful -
Hug
1 ReactionI was recently diagnosed with a heavily calcified lesion on the extra axial left frontal region. My dr has just ordered a ct scan now after the mri showing the calcified lesion. I also had a childhood head injury to the left side of skull above the eye. Was hit with a red paver brick. Punctured the head, got stitches no xrays and sent home. Now 45 yrs later had a mri done and this heavily calcified lesion has shown up.