Neurogenic bladder and foley catheter

My husband has a neurogenic bladder and had a foley for almost 3 years. In 2015 he had the surgery to have a Supra pubic tube put directly into the bladder. He uses smaller bags to empty his urine during the day and it enabled him to be active. He even was climbing trees as an Arborist. There are larger foley bags for night. The thing is, after all these years, his bladder shrunk. Now facing a kidney transplant, they want him to have a bladder augmentation, which is to take some of his small intestine to make his bladder bigger. This is the reason I am on here to see if anyone has a similar experience. One thought is to use clamps to stop the bladder for emptying freely and hopefully maintaining the size of the bladder. I wish this was pointed out to us, although it may be uncomfortable for him to have had that pressure. There are also urostomy's that are placed in the bladder which would also need to be straight cath'ed and emptied that maybe you would like to research. Just a couple of ideas. Best of luck to you!

Hi @sahrens99, along with @dorothyha76's helpful reply, I'm tagging fellow members @suzanbaltaji @terwifwoods @lindes @jenatsky and @vjlvpjalways to share their experiences with a foley catheter and exercising like running and cycling.

It's been a few days since you've had the catheter installed. Have the issues resolved? Are you able to continue your physical activities to your usual frequency and intensity with the indwelling cath?

Only in for 17 days, urinary tract infection.. all clear now..!

I have been able to ride my bike and swim. Running is proving to be too uncomfortable and painful to go more than a few miles.

Suprapubic catheter placed 5 weeks ago due to enlarged bladder/urinary retention causing bilateral hydronephrosis. Also had TURP done a year ago. Hoping to have a new catheter placed so I can eliminate bag at least during day and empty my bladder every 2-3 hours. Also diagnosed with stage 3 CKD. I am told the catheter will be with me for life but will save my kidneys. Recent labs show kidney functions improving. Would love to get back to activities like traveling, hiking and pickleball which I use to play 3-4 times a week pre catheter.
Anyone else have similar conditions or suggestions?
Thank you!

I had my third TURP 13 months ago as I was having difficulty voiding. I had no feeling that my bladder had 2100ml pf urine and no urge to void. I've been wearing a foley catheter and having it changed every 4 weeks ever since. I was most concerned about UTI's caused by the Foley eventually killing me for lack of an antibiotic that worked. They found a nodule in my lung recently that turned out to be thyroid cancer. Between the PET/CT, MI's, CT scans, they discovered that C-4 and C-5 had slipped forward. There was no spinal fluid in these areas as they were pushing on my spinal cord. In the past 2-3 months, I've started to get the urge to void and now when I stand over the commode to empty my bladder and push, a strong stream comes out of the foley instead of a dribble. I can only assume the nerves that conduct the signal to and from my brain were the cause of my bladder disfunction and are repairing themselves.
I have some tips on the foley catheter. I was using the leg bag during the day and every time I stretched my leg to get out of the car, the bag would separate and I would be wetting my pants the entire time I was shopping. I found valves on A**zon (5/$10) they work great for daytime. You have to drain them every three or four hours. I used to use the night bag but now, I drink liquids a couple hours before bed, empty my bladder and leave the valve in

@pmenor Ever consider a catheter valve. No bag required, EVER

@jondajess For those with neurogenic bladder.
have them image your spine. Nerve damage there is the likely cause.
My urologist did a urodynamics test. Saw I couldn't squeeze my bladder and sentenced me to life with a foley. I'm going to a neurosurgeon in the very near future to resolve this.

@jondajess I have gotten rid of bag. Use a plug in end of catheter