← Return to I have JAK2 ET and MPN: Anyone else have these symptoms?

Discussion

I have JAK2 ET and MPN: Anyone else have these symptoms?

Blood Cancers & Disorders | Last Active: Nov 28, 2023 | Replies (49)
Comment receiving replies
@sregiani

Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not be related to ET w/JAK2). Do your fingers or toes turn white before darkening when the blood flow returns? That’s classic Reynauds. In any case, you should contact your Doc.

Jump to this post

Replies to "Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not..."
ger63 | @ger63 | May 6, 2023

Thank you for this. I need to examine if my fingers turn white. I would venture to say they are a deep red color in the cold. I am just so intolerant. Painfully intolerant. I also would say my skin looks different. I don't know if it is from the medication as I said in my comment. The left side of my face (cheek) also gets redder than the right side. Go figure. I do have a follow up with my Hem/Onc doctor in the next few weeks. Thank you again for your response. All of this is a journey. I am glad I have the forum as I said previously.

VIEW AND REPLY