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I have JAK2 ET and MPN: Anyone else have these symptoms?

Blood Cancers & Disorders | Last Active: Jun 19 5:40am | Replies (63)
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@sregiani

Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not be related to ET w/JAK2). Do your fingers or toes turn white before darkening when the blood flow returns? That’s classic Reynauds. In any case, you should contact your Doc.

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Replies to "Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not..."
ger63 | @ger63 | May 6, 2023

Thank you for this. I need to examine if my fingers turn white. I would venture to say they are a deep red color in the cold. I am just so intolerant. Painfully intolerant. I also would say my skin looks different. I don't know if it is from the medication as I said in my comment. The left side of my face (cheek) also gets redder than the right side. Go figure. I do have a follow up with my Hem/Onc doctor in the next few weeks. Thank you again for your response. All of this is a journey. I am glad I have the forum as I said previously.

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