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Chronic Digestive Disorders

Digestive Health | Last Active: Nov 9, 2023 | Replies (129)

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@rozy288

I’m praying for you too …. We are in a horrible place in this life and having people understand it is so key . Most are sick of hearing about it , so I just don’t talk on phone anymore to anyone because I feel like I don’t have anything good to say . I just ask them how they are if I do .

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Replies to "I’m praying for you too …. We are in a horrible place in this life and..."

I can’t imagine 10 years feeling like you have😔 I have been sick everyday for the past 16 months with never a relief from feeling horrible. I have all the symptoms you do. Have been to 6 GI doctors, 2 ENT, 2 surgeons. 4 endoscopies, Manometry, the worst, scans, ultrasounds, biopsies, gastric emptying. All this in the past year. The last scope was done a month ago at UCLA by an interventional endoscopic surgeon. Did an EUS, endoflip, wireguided dilation, previous 3 dilations have been balloon, and he was checking to see if I have Achalasia. Now I will start taking a low dose, 10ml of an antidepressant, Nortriptyline. Hoping it will help with the nerves in the esophagus and stomach. I’m trying to keep hopefully but it is difficult.
Can’t eat hardly anything which makes it difficult to gain any weight. Hope you can enjoy your vacation but I understand with feeling so sick and fatigued, it’s hard to even do simple things. You are right no one wants to hear about it after this long. They just don’t understand how it feels to have this everyday.